My Little Darlin, PT day 32 by David

Yesterday Jan's tracheostomy tube was downsized.   This allowed her to breath around it and she began saying  subtly the word no.  She said it a lot.  Her trachea later on was completely capped and she started breathing through her airway normally.  She increased her vocabulary throughout the day and was responding mostly appropriately.   She developed the use of several phrases throughout the day that she used repeatedly.  One of her favorites is "I don't like it".   She also has said a time or two "I am pissed off".  She will answer some questions appropriately but mostly she simply responds with no.  She did call me D Mo which is a nick name commonly used outside of the hospital.  She makes me smile a lot for the first time in a month.  Mostly because she is clearly improving but also she is really cute and entertaining to talk to the way she is now, kind of like what I think a child smoking pot would be like.  She has not slept much (and I have not either) since she has been out of the CCU.  The best way I have found to get her to sleep is to mentally stimulate her.  I can do this by showing her photos and asking her to tell me who she sees.   When doing this she mostly tells me "I don't like it".  She continues to increase use of her R arm but it is still gross somewhat spastic movement.  There is some improvement in her fine hand movement as well.  I think I see some increased movement in her L arm and hand.  Her legs are also becoming more and more active.  Physical therapy put her back brace on yesterday and briefly sat her up on the side of the bed.  She did become orthostatic (her blood pressure dropped) but this is not unexpected given that she has been in the bed for so long.  Will increase slowly her time up and activity.  I also expect since she is doing so well with her tracheostomy capped that this will be removed in the near future.  Over all I give her a great big  !!!!!!!! T I V G T !!!!!!!!.

As every knows by now our very wise justice system has again failed those it is supposed to protect.  This is Mississippi, this is what we have learned to expect.  Several have posted with question as to why Mississippi code 63-3-401 which gives 5-20 years does not apply.  I was given legalese talk by the DA.  I would appreciate it if someone could explain it in laymen terms to me.  I only understand right and wrong and reading this code to me says if you get back in your car and rerun over someone then you have failed to stop and did not comply with the requirement of the code no matter your excuse.  I was told the excuse was panic and trying to move the car off the road so there is no violation.  I am a simple MD, please someone who understands the law explain this to me for my peace of mind.

In any case the law must be amended.  There is an amendment to the three foot law being drafted to be introduced by Representative Margaret Ellis-Rogers of New Albany.

!!!!!!!!!!!! The most important thing every one must do now is flood/call their  own representative and tell them to support this bill !!!!!!!!!!!!!!

******CALL YOUR REPRESENTATIVE NOW********
Tell them what happened to My Little Darlin Jan.

The other thing that must be addressed is cell phone use in automobile.  I am almost certain what was done to Jan was because this woman was on her cell phone.  The investigators could not pull these records because it is not against the law.  IT SHOULD BE CRIMINAL PUNISHMENT JUST LIKE DRUNK DRIVING if you do what was done to Jan or worse if on a cell phone.  The above amendment should take care of the criminal punishment for this but people will still be using that !%@#$ cell phone while driving and maiming or killing people.  There should be a stiff fine if caught using a cell while driving.

I need help with all of this.  I am having a very difficult trying to take care of Jan, myself and get any sleep.  Jan is my priority.  I will continue this post but my time is much more limited now that Jan is out of the CCU and we are about to head to Atlanta for rehab.  This page has generated cohesiveness but as a like minded group a central point of organization needs to be designated so that the momentum is not lost.  I suggest a start would be all of the cycling and running club leaders of the state to communicate and make some leadership organization.  Please do not let this momentum drop.  I need your help to prevent this. Thank you Robert  Garrett for getting on top of the amendment change.


SHARE THE ROAD, IT'S A LIFE
PUT THE !%@$# CELL PHONE DOWN BEFORE YOU KILL SOMEBODY
GET OFF THE COUCH, LIFE IS FOR DOING STUFF

I love My Little Darlin, I am so happy to still have her with me
David